Ben's Story

 
 
Ben was gifted to our family as a buy-one-get-one package in May of 2009, an identical twin. We felt like we had won the lottery! TWO healthy babies at once! From the beginning, he was my smiler. Easy-going, let-me-just-do-it-for-my-brother-and-save-everyone-the-hassle kinda kid. A joy.
 
For the first four-and-a-half years, he was a healthy kid. Tough, actually. He never complains about anything. An optimist. Even when his sister broke his toy and his brother yelled at her, Ben corrected him, saying, "But Jack, now we have TWO!"
 
 
But in the middle of January 2014, Ben started complaining of headaches. Headaches? How does a four-year-old even know what a headache is? This usually accompanied severe stomach pains. And you could tell they were painful. His only relief was to get sick, sleep and then he'd wake up and eat - a happy man! Then the headaches started coming more frequently. And lasting longer. We went to the pediatrician: sinus infection, they said. They sent us home with an antibiotic. But it didn't seem to help. We went to the ER: constipation. Then they prescribed a stronger antibiotic. Still, no change. Finally, nine days after the first headache, my husband insisted we visit the ER again. And this time, we wouldn't leave until we had answers.
 
That evening revealed the unimaginable. A tumor. A big one. The size of a pear. And it had overtaken Ben's brain. And it looked aggressive. An MRI, brain surgery with an amazing team of pediatric neurosurgeons and a pathology report confirmed: our healthy little boy had a cancerous brain tumor. Stage IV Glioblastoma. An adult cancer. That only 0.00002% of the population gets. And it was likely that he only had a few more months before it overtook him completely.
 
This week, February 25th, we begin an aggressive treatment plan of both radiation and chemotherapy at Roswell Park Cancer Institute, right here in Buffalo, NY. We are scared. We are intimidated by the scientific odds. But we are also people of faith. We believe that God has a higher purpose for our "mighty" Benjamin and that He will work a miracle in his life. Because God has never failed us. Not even once.
 
 
We have received an amazing amount of support from our family, friends, community, and people all around the world. We will always be indebted to the many prayers said on our behalf.
 
Thank you for walking this road with us. We are so grateful not to walk alone.

196 comments:

  1. Thank you for sharing and God be with you all.

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    1. please try the gerson method. It has been a cure for cancer for awhile. This is not spam. Please take a look at it.
      https://gerson.org/gerpress/the-gerson-therapy

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    2. I don't know who "How to buy a car" is, but I agree that the Gerson Method is a legitimate treatment. It's intense and time-consuming, but it has led to great results.

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    3. I have stumbled upon this blog quite by accident and am so sad for this brave family! I immediately wondered if this wonderful family had considered nutrition and natural medicine in addition to traditional medicine and then say this! I couldn't agree more and you have nothing to loose. Cancer patients all share one thing, an acidic body. Perhaps your dear sons body needs to be returned to a more alkaline state. You are in my thoughts and prayers sweet Ben and your wonderful family.

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    4. Don't know you, but my heart goes out. My 8 year old daughter was diagnosed with Leukemia this year. She and mom are at Children's hospital for another round of chemo today as my 4 year old and I keep updated on Facebook and saw your story. If I can offer any support I would.

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    5. Oh my! My father passed away from stage IV glioblastoma 23 yrs ago. I will pray for you. God bless you and your little boy as you take what might be his final days and know that God has a plan that is bigger than we are.

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    6. I can't imagine the pain and anguish you are going through. I can imagine the love and strength of our Father in heaven has for us. Peace, love and mercy to you and your family. Thank you for sharing. God Bless each of you.

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    7. "How To Buy a Car", I think maybe you were 'supposed' to find this blog. Our God works in mysterious ways. Maybe it wasn't so much an accident. My prayers are with Little Ben and your entire family. I know God has him in His hands!

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    8. Ben should qualify for a clinical trial. There are trials that are FDA approved high tech research trials that are 20 years ahead of conventional oncology. For example the Mayo clinic is injecting the measles vaccine into brain tumors, which liquifies the tumor quickly. It is safe, as it has been given to children in their MMR shots for over 50 years. Another trial injects nano particle iron into the brain tumor and the Radiologist run the patient through an MRI, which heats up the metal nano particles and cooks the tumor. My website is bio-targetedcancertreatments.com. I am a graduate student in cancer biology and I help cancer patients get into FDA approved research trials.

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    9. Gerson Method does not work. Its healthy living for sure but it has no proven effectiveness against cancer especially advanced stage cancer. Just ask Steve Jobs if it worked since he chose it over a whipple procedure to cure his pancreatic cancer against his doctors wishes. Well, obviously it didn't work

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  2. Please know that even though we don't know each other, I'm praying for your son and your family...one mom to another.

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  3. (((HUGS))), huge ones. As a mommy of two young boys my heart goes out to you and your story touches me to my very core. Thinking of you, praying for all of you and sending very gentle hugs to sweet little Ben and his siblings. Praying for the day promised in the Bible "where no resident will say, 'I am sick'".

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  4. I'm so touched by your story. I have 2 year old b/g twins. You and your family are in my prayers and I'm praying for a miracle for your son. He sounds like such a sweet boy. God Bless you all!

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  5. Please know this blog is not our "Window into your world"! Rather it is a "place in your path to journey alongside you". It's a privilege to pray, it is a pleasure to pray for specific needs. Humble are we---and steadfast! Got my boots on, I know this could get muddy but my heart's in it for the long haul!
    Ever so gently,
    heather

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  6. I am looking out my office window and see Roswell and my thoughts and prayers are with you.

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  8. Saw a link to your story on my FB news feed. Sorry to hear of this traumatic turn of events for your family. Your perspective is remarkable. It is good to know that we are a small part of a greater story that God is writing. I'll be praying for your little guy and your family as you continue this journey.

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  9. http://www.burzynskiclinic.com

    The above link is for a clinic run by a doctor who has had much success, from my understanding, with cancers like the one your son has.

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    1. Yes, they specialize in brain tumors.

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  10. I am so very sorry to hear about your son. I don't know you, but came across your blog when a friend shared a link. I know a man who passed away from Glioblastoma Multiforme during the summer of last year. He was 29, had a one-year old son and a wife who is exceptionally strong. The two of them were very strong in their faith throughout the entire process, just like you, and while their outcome was not positive, I would encourage you to look up "Dustin Rhodes - The Fight Against Brain Cancer" on facebook. Rebecca continues to post updates on how she and her son are doing, memories of Dustin and she's really a shining example of how someone can trust God completely. She ends every post with "Trust in The Lord with all your heart." God bless, and good luck. I have a son who will be four in March, and just reading about what you are going through made my heart sink. I wish you nothing but the best.

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  11. I saw your story through a friends FB feed. I am praying for you and your family. Your mindset is perfect and as someone who has been through extremely difficult trials, I an tell you that there is nothing like resting in the palm of the Lord's hand. We must choose to walk by faith and not be sight. It is our faith that sustains us. I would recommend this book/podcast series by James MacDonald: https://store.jamesmacdonald.com/p-2116-when-life-is-hard.aspx

    May the Lord bless you and keep you. May He uphold you with His righteous right hand. May He grant you peace and strength.

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  13. I'm praying for your family. I've shared Ben's story with friends and family so they may to pray. May God bless all of you.

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  14. God bless you and your family. I will keep you all in my prayers. My father is currently battling leukemia at Roswell and they do amazing work. Please keep the faith and take care of yourselves adn try to laugh each day at something... I beleive laughter is a gift from God. Stay strong, have faith adn love each other.- Molly

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  15. I am praying. I am praying so hard for Ben. We don't know each other, but I've been following your story through FB, and I was absolutely devastated and sodden with tears when I read the results of Ben's surgery. I think about his light and joy, and his brother and sister, and his strong parents, and I pray so very hard that Ben heals. I also have a 4 year old, and they are an amazing gift. I am so very sorry you all have to go through this. Ben is clearly a lucky little guy to have such a strong, thoughtful family. My heart reaches out to you all. Please know that we are all here for you, always.

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  16. Please know of my sincere prayers for your son, Ben, and your entire family. May God comfort Ben and your family. God will give you strength, and your strength will be your son's strength in difficult times like this. I'm praying for a miracle for Ben, you can count on my prayers every day. God bless all of you, He will guide you, protect you and love you through all of this. Your faith and perspective are inspiring.

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  17. We have been praying for Ben as well as your whole family. Cancer is a big, scary word, but we have an even bigger God. I pray for Ben's complete and total healing. You will be in our constant thoughts and prayers as you navigate these treacherous and choppy waters.

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  18. Andrew and Mindy - I read your entry through tears. Having a hard time grasping what Ben and each of you are experiencing. Having known the Sauer family for nearly 40 years and knowing all the hardship they have endured during those years breaks my heart. My prayers and thoughts are with each of you. May the sustaining grace of our loving God flood your lives.
    Corrie Ten Boom was once quoted "There is no pit so deep that HE is not deeper still". Trusting with you in the God that goes above and beyond what we can ever dream or imagine.
    Don Santucci

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  19. I'm sending the warmest thoughts and prayers your way from Boston. I came across your post on facebook, it was shared on my news feed. I have strong ties to western NY as I went to school at St. John Fisher in Rochester, maybe you're friends with an Alum who I know. I wish you nothing but strength, love, courage and faith as you and your family begin to sail these uncharted waters. I'll be praying for Ben.

    Nicole Yandon

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  20. Jesus, Healer and Redeemer, I pray for Your mighty healing hand upon Ben today. Thank You that You are using his trial to show Your glory to many people around the country (world?). You are faithful and we are trusting Your will in this situation. Please help Ben's mom and dad to not be anxious about anything, but in everything, to lift up their prayers with thanksgiving. And I pray that Your peace, which goes beyond all understanding, will guard their hearts and minds in Christ Jesus. I pray for Ben's complete healing in the powerful name of Jesus. Amen.

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  21. As a Christian mother of 4, I am deeply moved by your story and will be praying hard for him and your family!!

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  22. Such a precious little one! I hope you are soon cancer free!

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  23. I pray for the continued strength and peace of God be with you and your family, and for healing for your darling son!

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  24. Praying for Ben! Miracles happen every day!

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  25. I will be praying for your family. May God continue to richly bless you. The strength that He is giving you all through this time is inspiring. Thank God one day we will no longer have to endure these things.

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  26. Most importantly, I am praying for you and your family. I too am a mom of multiples and I have a son who was diagnosed with cancer in 2009 (Neuroblastoma). Our oncologist at Strong in Rochester specializes in brain tumors. His name is David Korones and perhaps a second opinion might be beneficial. He is kind, compassionate, and anniversary incredibly brilliant man. The Lord is concerned with each and every one of your tears, they are not wasted. I do not know your pain, but I do know our God. Praying for you. Megan stepsforbrady.blogspot.com

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  27. Please look up Outsmart Your Cancer website... it is a book that talks about alternative therapies and contains a Elonna´s story... a lady who was cured 24 years ago of Glioblastoma Stage 4 on page 134 of the book. Elonna is available to talk to by phone... if you have a problem connecting... feel free to email me at: proudfoot766@gmail.com Praying for God to guide you...

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  28. Dear family, your story reached Mauritius! How wonderful. My heart goes out to you. I'll be praying for you everyday and will have special thoughts for Ben on the 25th. I'm a cancer survivor. You are all in your Father's arms and He's watching over you. God never lets us down.

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  29. I know you through the Minters (Lynn and Kelly Kitts). Your story has touched my heart very personally and I've cried, prayed, and begged the Lord for a miracle on your behalf. I will continue to beseech Him to pour out His love, mercy, peace, and strength to you all. May you see a miracle through all this trial and may you have peace and joy soon! ~ Sue Barth (Lynn's sister)

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  30. We're with you in spirit, as are all parents. Many prayers for your family.

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  31. God hears your prayers and He is faithful. Believing for life for Ben- and praying for wisdom for the doctors. Will keep praying until that miracle comes your way!

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  32. Praying that your beautiful miracle receives a miracle and that God rests His hands on your entire family and guides you all on this unknown journey.

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  33. Hoping you can find a little comfort from all the love and prayers coming your way...My sister is a 17 year cancer survivor, my 8 year old niece a thriving child after luekemia tortured our family for months...God is good and faith gets us through everything...prayers, prayers and more prayers coming your to your family...please marinate in the love....

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  34. God bless you and your family. Whatever His plan, may you find courage and peace. Your faith and strength are encouraging, even to me, a complete stranger. Hug your loved ones a little more closely. And thank God for each day you have together.

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  35. Praying for Ben's healing and strength for your family.

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  36. Praying for Ben and his family.

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  37. I will keep Ben and your entire family in my prayers

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  38. May God be with you. I am a survivor of cancer myself. My wife and I are sponsors of St. Jude's. We really want to help you in any way we can. May God bless and keep you. Are there any plans for a fundraiser for your family?
    Dave and Jen Saj

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  39. My niece was diagnosed with neuroblastoma at 5 with a brain tumor the size of a grapefruit. Miracles happen. This year she will turn 17. Payers to Ben. XOXO

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  40. Reading this through tears. I am a fellow (local) twin mom. I am thinking of you and your family. I will continue to keep Ben and your family in my prayers. xo

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  41. As I read your story, I can't fight back my tears as I too have a four-year-old son. I pray for Ben, your family, strength, and for God to hold you all in His arms. I will be praying for Ben every day! My thoughts will continue to be with you all!

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  42. I thank You FATHER for encapsulating this child's entire brain with the Blood of your Son Jesus Christ. I thank You Father that he has been made whole in the name of your Son. I thank You FATHER that your Son bore his sicknesses as well as pains any by His stripes he was, was made whole. I thank You Father that this child will grow up in the fear and the admonition of You, Yes Lord he will. I also pray and thank you for their peace in Jesus name, yes.

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  43. Hi Ben. My name is Mike. I run an online Facebook support group named " Curing Cancer with a Smile." Tonight I got up a little energy to read a few posts and someone posted your blog. That is what brought me here. Now about me. I have my Group, I also run two online blogs, and oh yeah, I also have stage IV GBM. I am 52 and have survived for a little over 5 years now. It has been quite the struggle and to this point I have survived the odds, but it is getting harder and I am now in Hospice. I guess what drew me here was knowing what I have gone thru, it breaks my heart in two to thank of a 4 year old having to go thru what I have. Life isn't fair. But what I have also learned thru this is that it isn't about how long, but what we do with it. You keep fighting, it's hard, but you can do this. With the Love and support of your parents, your friends and of course the Lord, this can also be fought. Just remember this, do it with a smile !

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  44. Take him to St. Jude's in Memphis. My cousin's son had a similar tumor at 8 yrs old and he just graduated from college. Please take Ben to St. Jude's, and take him NOW.

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  45. Found your blog through a friend. I am praying for Ben and your family.

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  46. We too are a GBM family our hearts are breaking for you all. Remember this...no regrets! You do what you think is best for YOUR son. You are his parents. Live life, love deep and leave the complicated stuff to GOD. We can not change GOD's plan, we don't have to like it or agree with it, however he can help us through the journey if we give him the chance.
    Storming the heavens with prayers for your family.

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  47. My father died of GBM in 2009 after a valiant 20 month fight. I did a lot of research on GBM at the time and concluded that a dendritic cell vaccine (DC Vax) was the most effective treatment available in clinical trial. I think it still is and a company called Northwest Biotherapeutics should eventually get FDA approval for their DC Vax. I tried, but was unsuccessful in getting my father into a DC vaccine clinical trial. We had to settle for using Avastin which helped prolong his life, but only kept the glioblastoma in check for a while. Duke University has a great brain tumor center, but I hope you can get Ben into a good clinical trial. My prayers go out to you and him. It's a rough diagnosis, but nothing is impossible with God. Best of luck to you!

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  48. We will add Ben to our rosary intentions. Our dear friends are going through chemo with their 2 month old.

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  49. I don't know the day in May that your boys were born, but my son was born May 15th 2009. It breaks my heart to hear that your family is dealing with this. I pray for healing and comfort to all of you.

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  50. I am not trying to change anything or give false hope, but I just wanted to say my prayers are for you and your family. Please call Dr. Burzynski, if you have not already done so. I have no affiliation, no personal experience, I have just watched his documentaries, and followed his story for quite some time. http://www.burzynskiclinic.com/

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  51. Sending you and your family prayers from Argentina.

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  52. My heart is breaking for you and your family! I pray that God hears these prayers and touches Ben with his healing hands. I pray it gives you strength in knowing that God is there with you! God Bless you all!

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  53. sending prayers for sweet Ben and begging the Lord for healing and Hope.

    http://www.projectviolet.org
    Dr Jim Olson in Seattle Washington is working with
    optides to help with identifying cancer cells
    Not sure if this will be helpful, Dr Johnson treats pediatric patients with brain cancers, in case you want a 2nd opinion.

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  54. I'm so proud of you and your faith... I am a stay-at-home mom with a six-year old boy and twins girls who are three, and I have a benign brain tumor myself. I am going to go give our sleeping kids a kiss right after I get done printing your Ben's photo. Me and the kids will be saying prayers for Ben and your family.

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  55. Your intention will be kept close at heart with my 8th grade students. They were all moved to prayer - REAL PRAYER - on account of Ben. I've never seen them so honest in their communication with God.

    We are surrounding you with prayer. May God keep you all enclosed tightly in His care. May Our Lady kiss each one of you. <3

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  56. I saw your story on a Facebook link today and although I do not know you or your son, Ben...I was so touched by your story. My son's name is Ben too. Prayers to you and your family...and most importantly, for young Ben.

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  57. My daughter was born 5 1/2 years ago with a rare brain disorder. All the doctors were very negative with her diagnosis. She has had her ups and downs but is still a thriving little girl. She can't walk talk or sit up by herself but she shows you love by her big beautiful smile. Having her in our life has dramatically changed not only my husband and my life but also our other two children. We know our time with her might be shorten but are thankful to God for what we do have with her. I pray that your family cherish all of the time you have with precious Ben and I hope God decides that he is needed here on Earth more than with Him in Heaven. At least for a while longer. I will be praying that God gives you strength and courage when encountering all that you are faced with. God bless your family especially Ben.

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  58. I am just a friend of a friend of a friend, a veritable stranger, but after reading today that Ben has Ben has been sent home on hospice, I felt compelled to ask whether you have considered a second opinion from Boston Children's Hospital? My nephew Owen was born with his brain growing outside of his skull and was given a 0% chance of survival by a very elite neurosurgical team at our local children's hospital. He was sent home on hospice with his parents, at only a week old. His parents, in deperation, sent his films to Boston Children's Hospital, and a team there said "yes" where everyone else had said no. They sucessfully removed Owen's huge encephalocele and he is a healthy 3 month old today. I know you are waiting on a miracle. I just wanted to share with you that our miracle was found in the hands of doctors at Boston Children's. http://childrenshospitalblog.org/our-patients-stories-treating-owens-encephalocele/

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  59. Please consider God's GIFT to humankind: HEMP OIL!
    http://www.cureyourowncancer.org/cannabis-compound-destroyed-incurable-brain-tumors.html

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  60. My heart is with your family. My mom was part of that .00002% of the population to have the same cancer. <3

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  61. As was my son, Jack. He died shortly before he would have turned four. This is his story www.jacksbattle.com I'm so so sorry.

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  62. Ben will be my Rosary intention throughout Lent. *hugs*

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  63. Lord, I thank you in Jesus' name for the healing that is going to take place for this sweet little boy. I thank you that you have AMAZING plans for Ben. I declare LIFE and NOT death, in Jesus' name. It is absolutely true that you turn all things for good, Lord. & I thank you that your diagnosis is for health and wholeness. I thank you for a CANCER FREE result from the doctors- let this be a radical healing for all to see... and let it glorify you, Almighty Lord Jesus Christ. I pray that, after this healing takes place, Ben's mind will be sharper, his smile will be *even* brighter, and this family will freed of this all. Satan, I cancel your assignment- for you have NO authority. Loving Father, I thank you again for all You are, and all You do. Let us never depart for Your ways. Let us stand STRONG in Your Word. In Jesus' name... Amen.

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  64. Sorry to hear of Ben's diagnosis. Check out Dr. Burzynski, a cancer doctor out of Texas. There's a documentary. It's an alternative form of treatment and he has provoked some controversy (mostly from the pharmaceutical companies), but has lots of positive results. Sending good thoughts!

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  65. Lots of thoughts and prayers for Ben, and for you all!

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  66. So very sorry to hear of your son's diagnosis. I have raised three sons and can't imagine how you are dealing with this. My thoughts and prayers are with you while you deal with this.

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  67. God is Good and even though we don't understand His plans He does have a reason that will be revealed to us someday. I can't even imagine what your family is going through but please know you are all in my prayers. Ben's Story has also been added to a FB page 'Saved By The Grace Of God' and everyone will be praying. Miracles happen everyday and I pray Ben's total recovery is the next on the list. God Bless!

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  68. I have identical twin boys who are also named Ben and Jack. They are 5.5 years old. I can not imagine how you must be feeling right now. My heart goes out to you and your Ben, and I will be praying for him, and hoping he can beat the odds. Your story has touched my heart.

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  69. May our almighty God rest his hands upon your dear son & heal him! Praying for healing for Ben & strength to persevere in this fight for you & your entire family. My heart goes out to you all. I couldn't stop sobbing while reading Ben's story & I'm praying for a happy ending for all of you. God bless!

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  70. I learned about Ben when my daughter brought home a paper saying to wear blue on Friday for Ben and I just got done reading your blog I am so sorry, Ben and your family will be in my Prayers

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  71. James Ryle of Truthworks ministry has been told he needs a heart transplant and without it only has 12-18 months to live. That said, I want to share a portion of his message with you because I think it is a good example of how we should always pray - not begging God to heal, but speaking with authority! (you can read the entire post at truthworks.org)
    ><><><><><><><><><><><><><><><><><><><
    I would very much appreciate your prayers for me and my family. But, please; no pitiful prayers. Don’t go before God like a beggar asking Him to do something that you not sure if He will do it or not. That insults Him; and does me little good. Ask Him to fill you with His Holy Spirit and compassion, so that can rise to occasion and speak to this mountain in the name of Jesus.
    Take up your authority as a follower of Jesus, and fellow-soldier of faith in this battle against the powers of darkness. Draw your sword, stand your ground, and speak with authority over the power of the enemy. Tell him to back off. Rescue me from the field where I have fallen and bring me back to the tents of mercy I may mend and recover from my wounds.
    The Lord willing I will do so, and soon be standing by your side on the front lines once again!

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  72. brain tumor mom here. praying and praying for you all. praying for ben's total healing, for your family to fall into a new normal, and for peace and clarity on this journey.

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  73. Sending my love and prayers for your sweet Ben, and your family. Hang in there Mama, God is able!

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  74. Im very sorry for your family, it just breaks my heart. Please check out "waves that heal" ....you never know what may work for your son.

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  75. Thank you so much for sharing your story. I have 2 year old b/g twins and could not even imagine going thru what you are. Your unwaivering faith in our Lord is inspiring and your candor while sharin your story is so very brave. Please know that your son and your entire family are in my daily prayers. I do believe in miracles and will pray with my all that our Heavenly Father will grant one to your son. May god bless you, your son and your entire family.

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  76. I pray for a miracle for Ben. I too have boys 3 in fact and even though I have no experience in this, I feel as though it's happening to me. I cry with you with every post you share. I'm so sorry for this. I too believe in miracles and as I said before I'm constantly praying for one for Ben. Thank you for opening up your doors and sharing with us, it takes a lot to do that. I don't think I would be able to. You are an amazing woman and mom. I love Ben and I've never even met him!

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  77. Thank you for sharing your story. I love Ben's response to the broken toy, "now we have two"... especially poetic from an identical twin. :)
    Ben's presence in the world has touched my heart, and I pray that he has many more years to touch people's hearts, he sounds like an amazing person.
    Thinking of your family.
    -Sara from St. Louis

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  78. You and your family and your sweet sweet son are in my prayers. I'm praying for a miracle to take this away from him. Hes so beautiful, truly an angel!

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  79. Saying prayers for Ben and your family! Praying that God heals him and makes him all better.

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  80. I don't know you, but as a mom, my heart breaks for you and your sweet little boy. I am praying.

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  81. Just found your blog posted from some friends on FB....
    Want you to know that my prayers will daily follow you! I believe in miracles, I believe in God's strenght, assurance, confort, healing hand.... I pray Ben will be your personal miracle to glorify God.
    I will share your prayer request with my church here in Florence, Italy.

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  82. Though we do not know each other, from one mom to another, deepest heart felt prayers of the greatest miracle for your sweet baby boy Ben, you and your family

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  83. I am praying for Ben and your family. How terrifying this must be to go through. I pray that God will give you a miracle.

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  84. May God hold you all in the palm of his hands and bring you through this trying time. Bless you all.

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  85. Beloved sister and family in the LORD. I have no words of wisdom that hasn't been posted already. All I have are my prayers and warm, healing, happy thoughts.
    Abba, Father, You are the Most High God. Thank you, Jesus for leaving Your throne of grace to pay for our sin debt. Thank You Father for Your provision, even normal events that we take for granted. LORD, I come to Your Throne of Grace not for myself, but for Ben and his family. Abba, as you know, your baby is hurting and is very ill with a tumor in his head. His mom and dad, brother and sister are under a tremendous amount of stress and strain. Please, LORD, You said that when two or more are gathered in Your name, there You are in the midst. I beg You, Father, to please shower them with Your mercy, grace, healing and comfort that surpasses all understanding. Please be with the doctors, nurses and healthcare staff. Give them the wisdom and knowledge to bring about healing. Please, LORD, heal this little boy and make him well. We'll be sure to give You all the praise, honor and glory for it. In Jesus' most precious name I pray, Amen <3

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  86. We don't know you, but I've been praying for you and your family. Tonight as my 5 year old son Sam was saying his prayers I told him we need to add Ben to our list, he wanted to know about him so I told him a little and showed him some of your pics, he thought it was so cool how his twin was helping take care of him, and then he said we should go from Fl to New York on the plane to say hi and tell him we hope he feels better. He asked God to make the tumor smaller and say bye bye to it. Sam won't forget, Ben is on his prayer list from now on.....Angie and Sam

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  87. Sending heartfelt healing prayers for Ben, what a beautiful boy he is. I can't begin to imagine the heartache you must all be feeling, but I am also praying that you all can find strength to carry you through these hard times. God bless you all xx

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  88. Sending many thoughts and prayers for your family and beautiful Ben.

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  89. My husband was diagnosed with the same tumor this January. Our hearts and prayers go out to you and your beautiful boy. No child should have to go through this. We have faith in the healing powers of God and pray He heals your Ben. We are currently at the Cleveland Clinic with an amazing group of doctors. Push to find out what clinical trials Ben qualifies for after the standard of treatment. An angel sent us a book from the Musella Foundation called Brain Tumor Guide for the Newly Diagnosed. It is so very informative and also highlights amazing survivor stories. It may help you as well. We as a family have decided to live life one day at a time. We cannot worry about the what ifs if we want to move forward each day. Matthew 6:34 spoke volumes to us one Sunday at church in February "So do not worry about tomorrow; for tomorrow will care for itself. Each day has enough trouble of its own." We pray Ben tolerates treatments well and lives everyday happy as each child should.

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  90. From one twin mom to another, may God bless and keep you and your family. I will keep you all in my thoughts and prayers.

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  91. I've been following Ben's story, and today while on my laptop, my 8 year old son looked over my shoulder and said, "is that Ben?". I was a little surprised, because I hadn't talked to him about Ben. I said, "yes, it is! How do you know Ben?" He explained that his whole school has been praying for him. He attends St. John Lutheran in North Tonawanda. I was so moved with this, and proud of how mature my son was while talking about Ben. He wants Ben to know that even though he has never met him, he loves him. We are thinking of him and praying for him and his whole family. Christine & Max, Wilson NY

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  92. Praying for this sweet little boy. Praying for healing, praying for courage for your family, praying for the Lord to be near to you as you walk this valley. I'm so sorry you are facing this.

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  93. Don't ever give up. Believe me I'm crying with you and praying for all of you.
    Try The Cleveland Clinic or Strong Memorial.
    Peace from West Seneca, NY

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  94. God Bless you!
    Me and my family will be praying for you!

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  95. Continued prayers and good thoughts sent your way...

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  96. Brave Ben I will say a prayer for you and your family every day. God bless you and your family

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  97. God bless Ben and your family. You are truly an inspiration. Your son has touched so many...praying for a miracle.

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  98. Praying for your lovely son, and for the Lord Father in Heaven to remove this cancer illness from his body and breathe the fresh breath of healthy life into your son. I also ask that you and your husband are covered with comfort and wrapped in the Father's arms during this very difficult time in your lives. You are more than conquerors, we will all be on our knees , fasting, and praying with you for your precious son. Lets remain in faith and love , and when you are weak, I pray that your tears are silent prayers to God. I am so sorry that you are going through this, Good and faithful servants let your faith be tested, for you are strong in him in the mighty name of Jesus. Love you guys, praying with you everyday.

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  99. As a mama of twin girls born in May, 2009...please know my girls & I will be keeping your little guy (and your family) in prayer for a mighty and miraculous healing. Praying peace that PASSES any understanding over you all now.

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  100. My fraternal girl/boy twins ere born July 11, 2009. We live in Memphis, TN, home to the most wonderful facility for children with cancer, St. Jude Children's Research Center. All they do is work in kids with cancer and research on cancer in kids. All the time. There is NEVER a charge. You will never see a bill from a doctor, lab or pharmacy. It makes no difference whether you are rich or poor, black or white, American or foreign born. Please look into this amazing, world renown facility. If you do come to Memphis, please look me up on Facebook and send me a message to Billie Shanefield Pierce. Best of luck to your little guy and your entire family.

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  101. I lost my twin sister to a glioblastoma just short of a year ago, at 54 years of age. It is a horrible disease and losing her after being one of a pair for so long was and is indescribably hard. I live in denver, as did she, but we have lots of family in Buffalo, and we are all praying for you and Ben.

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  102. Prayers for sure, but a $ donation also, via Paypal link.

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  103. I pray for your family and sweet Ben. We don't know each other, but your story was shared by a friend.

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  104. I am a mom too and know what it means to be one... Even though we don't know each other, I'm praying for your son and your family.. god bless little Ben

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  105. I'm praying to St. Jude and The Blessed Virgin Mary and.....Father Nelson Baker! Please cure Ben!!

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  106. A friend forwarded your link to me. I will be praying for your family. God bless you <3

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  107. Even though we do not know each other, reading bens story really hit me hard and i want you to know i will be praying for ben every night.. I also have twin boys born on july of 2009. Everything you described your twins are the same way mine are with each other.. I feel for you and your family.. I could not imagine going through this with either of my boys.. Please have faith he will get through this.. My brother was diagonsed with stage 5 stomach and esphogal cancer in 2012. Doctors in our area said there was no hope and no treatment would work we took him to dana farber in boston ma. They gave us hope and it worked all 5 of his tumors shurnk and he had surgery. Hes doing fine now and no signs of cancer.. I know its hard..stay strong for your precious boy.. Prayer are coming bens way everynight!! { HUGS}}

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  108. So sad to read this story. We will keep Ben and your whole family in our prayers. My best friends four year old little boy was diagnosed with stage iv neuroblastoma two years ago...he has fought hard against the odds and is happy and healthy now. I hope the same for Ben...one step at a time, and each time a little closer to getting better. I hope for strength for you and your husband through the coming procedures and trials...strength for Jack without Ben by his side at all times...and for your daughter too.

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  109. Stay Strong Ben! <3 You and your family are in my Prayers

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  110. Even though I don't know you or your family, my heart goes out to you and your precious boy and my husband and I will be praying!

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  111. I admire your faith and will be praying for God's strength and presence in your family.

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  112. Praying with you and for you. God bless you.

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  113. Praying for Ben and your family. I am a mom of boy/girl twins, both 6. I can't even begin to imagine how difficult it must be to get a diagnosis like this one and find the strength to get through every day, although it sounds like your faith in God has provided a lot of that strength for you. I will continue to pray that a miracle will happen soon for your family.

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  114. I would look through these comments and research these different methods of treatment mentioned. I cannot help but think of the story of Moses when he led the people to water in the desert. God had led them to bitter water, but also gave Moses the stick to make it sweet. God has led you to bitter water, but perhaps there is a stick in here to make it sweet, so don't turn down opportunity if it comes. I believe that God does work miracles, but I also believe that He wants us all to take the opportunities that He gives us. My prayers are with your family,
    -a fellow stranger and brother in Christ

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  115. http://www.starringscarlett.com/ This family has fought a glioblastoma since their daughter's birth practically. You may want to get in touch with them. They're a wonderful family and can probably offer you some insights and support.

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  116. I have been praying for Ben and your family since I started following your blog 2 weeks ago. Your faith strengthens mine, your heartache lays heavy on my heart and in my prayers. I have to believe (for my own faith) that Jesus' words are true..."When two or more are gathered in My name there I am in their midst."
    Like so many others I wish I had words of comfort for you and your family. I wish I could take away your pain. When praying the Sorrowful Mysteries of the Rosary, I often think of Our Lady's unimaginable pain watching her Son suffer. I pray that God restore Ben's health but as always that His will be done.
    God grant you His peace.

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  117. We pray God's mercy and strength will be yours as you go through this. Our hearts break for you and your family. Ben: You are loved...may God pour out His healing to you.

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  118. Praying for you all in the name of Jesus.

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  119. http://ourbravelittlelion.blogspot.com/?m=1. This is another family (my cousin's son) who went through something similar to your little guy. It is an incredible journey... Read it it will give you hope!

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  120. I am praying for your family. I wanted to pass along this TED talk on a new, successful treatment for GBMs: http://www.ted.com/talks/bill_doyle_treating_cancer_with_electric_fields

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  121. Praying for your beautiful little boy and your family during this tragic time. God bless you all

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  122. Praying for Ben...praying for a miracle...praying for your whole family.

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  123. From one mom of small kids to another I am praying for Ben. I am praying in faith that he will be healed.

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  124. Sending prayers for your peace and Ben's comfort. Your faith and loving strength is far beyond what most will ever understand. I pray that God reveals His perfect plan for you all and carries you through on wings of angels.

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  125. I stumbled across your blog through another blog. I am a mom of twin boys too, one of my twins went to heaven last year. Your story touched my heart. I will pray for your little boy and your family.

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  126. I came across your blog through Facebook. My son, who turns 25 today (May 1) was diagnosed with GBM in February and is currently undergoing treatment. I cannot begin to imagine what you are going through. A friend reminded me early on that there is one prayer that God will always answer with a resounding YES, and that is that He be glorified. He is being glorified through your journey. I am praying for little Ben and for the rest of your family.

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  127. All my prayers for Ben and your family. This breaks my mama's heart to hear about - I have two young boys of my own. My youngest son (who is 5 now) had a major surgery when he was 8 mos old - and during that horrible week all I could do was sing "Jesus Loves Me" to him. But such truth in that simple song. And Jesus loves Ben!! I will be praying for healing, for peace and for comfort. Much love, Heather

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  128. Thinking of you! I have two sons Ben and Jack so your story is close to my heart! Thinking of you and your family!

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  129. As a mom of twins(b/g 9 month olds) I want to let you know I'm praying for your family. I went to baby bungalow to get our elective ultrasound, and saw on their facebook page about your twins. Prayers and well wishes to Ben and your family in this hard time.

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  130. Please pray this for your son, it has been known to bring about miracles. My thoughts and prayers are with you......

    Oh, most beautiful flower of Mount Carmel, fruitful vine, splendor of Heaven.
    Blessed Mother of the Son of God; Immaculate Virgin, assist me in my necessity
    Oh, Star of the Sea, help me and show me you are my Mother.
    Oh, Holy Mary, Mother of God, Queen of Heaven and Earth,
    I humbly beseech you from the bottom of my heart to succour me in my necessity
    (Mention your request here)

    There are none that can withstand your power.
    Oh, Mary, conceived without sin, pray for us who have recourse to thee (3 times)
    Holy Mary, I place this prayer in your hands (3 times)
    Amen.

    This prayer is never known to fail and is to be said for 3 consecutive days. Publication on granting of the favour must be promised and done.

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  131. can't imagine what u guys must be going through!! sending you lots of love and prayers. stay strong!!!

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  132. Searching my heart for words of comfort and finding just these: I hope that each of us who feels some small portion of your pain is, by doing so, lightening your spiritual load at least by a small degree. Otherwise, no words. Praying for you to be able to comfort him and each other; him to lean into God's love enveloping him; and all who mourn to be comforted. His life on earth has left an indelible mark. What a beautiful boy.

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  133. I will pray for him and offer my rosaries, masses, Adorations, good works and sacrifices for his quick recovery

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  134. Dear family of Ben,

    I just pray for the beautiful son of yours. With faith in God he will win the battle.
    I would like to inform you about a new form of healing, here is a link to a documentary. Maybe you want some of Reconnective Healing practitioner in the United States. In numerous cases have miraculous effects. I myself got the cure of an autoimmune disease. I can not say if it works in all cases, but I find it very effective. There are testimonies of healing of cancer, inclusive. Here are some contacts in the United States. and the video link. All luck in the world. Hugs from Germany. Rafaela Documentar: https://www.youtube.com/watch?v=d5ZU0GSoeo8
    Contact Reconnection Page http://www.thereconnection.com/practitioner-directory/?strAction=advance&dirpage=0&total=1&ciudadFlash=&paisFlash=&stateFlash=&pagina=&total=1&continente=&word=&city=&zip=&idCountry%5B%5D=1&idProvince%5B%5D=&idCity%5B%5D=
    Contact Pat Atanas: Location:
    Coral Springs, FL, 33065,United States
    Phone:
    H 954 309 8853 M 323.633-6708
    Email:
    Pat@TheReconnection.com

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  135. Praying for you and your beautiful family. I pray that Ben does not have pain and that you and your family find strength and comfort. I live inTexas and just wanted to let you know that many across our nation and the world are praying for you.

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  136. I feel for you, my prayers are with you and your family. I also believe God Almighty has a higher purpose for all of us, may He give you strength to pull through this difficult time and help your little angel.. Hugs xxxx

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  137. My heart and prayers go out to you and your whole family! I know there isn´t much to do or even say at a time like this, but believe that God has a plan and is in control of this situation!

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  138. My heart breaks for you and your family. I am praying for you all.

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  139. Many, many prayers for your sweet family. May God bless you with the peace that passes all understanding. You're an incredible fighter, Ben.

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  140. To Ben and his family,
    I am crying as I read this. My heart breaks for your family, most of all for your little ones that will loose their brother and for Ben who will miss so much in life. So sad and so unfair. I hope you find peace and are soon pain free, Ben.
    Warmest wishes,
    Brenda
    A Mother to 4 and Grandma to 10 (3 of whom are 4 year old little boys) . I can't even begin to imagine this pain.

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  141. I simply want to say a prayer for your entire family after reading all you are going through. From our family in the chicago area to yours we send u nothing but comfort.

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  142. Your familys' story caught me off guard, I clicked a link on facebook and now my heart is saddened. Tears of happiness and sadness have fell from my eyes for your family. I know you receive many posts so I won't be offended if this gets overlooked.

    I'm laying here in bed trying to not read anything and everything about your family, see I work third shift and just made it home from work 3 hours ago. I'm exhausted, but I have a sister in Christ who is losing a child and I just cannot stop and spend a few more minutes to encourage her and her husband. Living by faith is not always easy seeing that we are made of flesh and sometimes our flesh doesn't compute things not seen. You two are a shining example of Christians. Believing that the will of God will be done and either way it's for our good. God knew us before we were born. He knew how many hairs are on our head, he knows our time of birth and our time of death, but death is only of the flesh, because to be absent from the body is to be present with the Lord. And what a glorious day it wil be for all of us once we are present with the Almighty God. Your son will be welcomed into the Kingdom of God, where allvoices are lifted up to praise His name, Ben will be whole again. Totally restored!

    My family, my children, my church, we all will be praying for your family. When two or more are gathered together He is in the midst. We will call upon Him to let His perfect will be done. We all cry for you, rejoice with you and admire your strength and courage through your Job moment.

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  143. I pray for you and your family. As seen through the eyes of a young 4 year old like Ben, "Heaven is for Real." If God has decided that is his next destination, he will earn his wings and watch over you and your beautiful family from the heavens. God only takes the special ones early. Love, comfort and strength to you.

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  144. Praying for you all! I am sorry you are losing him early - but grateful that you know the love of our Lord, and that his loving arms will not ever leave you.

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  145. Praying for you all as I write this. Loosing a child is hard. I lost my daughter and I know your pain. There is no pain that compares. I am so glad you know the Lord. Without him there is no way I would have endured to pain. It is only by drawing from his strength that one can get through such a time. Yesterday was her birthday. She has been gone 2 1/2 years and the emptiness is still there, but I know she is in heaven with her Lord and Savior. The hope we have in Christ is such a blessing. When Ben inters heaven he will be transported from your arms to the arms of Christ. As happy and content as he is in this world, it will be magnified beyond comprehension in the next. Draw from the strength Christ willingly supplies.

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  146. I've been praying for Ben and your family most of today and fasting for his healing. I work in campus ministry and have a host of students, priests, and religious sisters praying for Ben, too.

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    1. I am Praying for you and your Family Ben I am Praying for the impossible to happen to you please God help this family in need of a miracle. place your hand don little Ben and give this family a miracle is what they do deserve very much I dont know them but what I have read I feel like I Know them Please do what you can the impossible would be A nice surprise for little Ben and his family

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  148. My thoughts and prayers are with you,keep ypur faith and never loose it or give up because we serve an almighty God who can perform beyond our wildest dreams. My dad was diagnosed with kidney cancer in 2004 they give him 5 yrs with the surgery amd 3 without it and he just turned 84 yrs ols in febuary and still has no pain or no complaints hes had no chemicals or no treatmemt so our almighty God and no chemicals hes still going. So may God bless each of you and touch little Ben in Jesus name Amen..

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  149. Reading your story for the first time today has brought so much emotion upon me. I want to hug you all and just tell you you are so brave! Your faith in God through all of us really struck me the most...I will pray for you and keep you in my thoughts every night..

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  150. I too am reading your story for the first time...sobbing..and saying no..this just cant be. No one shoukd ever have to go through something like this. Having lost a son of my own as a preemie I feel some of your pain.I say some because your journey is your own. No one on this earth but you and God truly can understand the pain and the emotions you must feel. Thats why you have to continue to lean on him for strength...courage..understanding and peace. God must need another special angel to join my son Mason and
    all the other babies he cares for in Heaven. You are incredible for even being able to write this blog and share this story. I will continue to ask God to watch over you and your family and for your sweet baby boy.

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  151. Wow, what a wonderful little boy. I can't imagine what it would be like for me to watch my daughter struggle with an adult cancer. However, I do know what it is like to have had brain surgery. I am a Christian and friend of Karen Pustulka. I will pray for Ben and your whole family! God bless you as you deal with this unimaginable trial. When I was recovering from my surgery it really puts into perspective what is important in life. It is all about relationships. The most important being the one a person has with Jesus Christ. The parent-child relationship is another very important one. You are a very loving family. That was so sweet when Ben said after the toy broke, "But now we have two!" He already has the ability to see the best in a situation. That, along with the faith you have and the prayers of those around you, will make a difference. I am not sure why God spared me when I almost died, but if he had not spared me then there would have been a reason for that, too. Whether we live or we die we do everything for the Lord. God be with you and your family and especially little Ben right now. Peace, Kristi Dement

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  152. I can't even imagine the pain that your family is feeling. Know that I'm in Texas praying for you all.

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  153. Prayers for peace, strength and comfort for you family. I've never met your family, but I can feel a glimpse of your pain as a parent myself. I think as parents we are geared to deal with health issues for ourselves, but never prepared for something that is completely out of our hands for our children, our little blessings. As your faith is tested, try to remember the blessing you have had for 4 years rather than the years that you feel robbed. The pain wont disappear. Instead of thinking of him every day it might become every 3rd day, and in years maybe once a week. Allow the pain to come, but don't let it consume you. Live in the blessing that was and the blessing that are so that you do not miss them while they are all present. Don't forget you too are a blessing to others in your family. Allow them to feel comfort, peace and even joy through you as well. Pray for the miracles, but live for the blessings. Stephanie Deveau (Redding, CA)

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  154. My name is Whitney Madrigal. I live in Milwaukee, Wisconsin. My heart is so sad for you guys right now. I can't fathom what you all are dealing with right now. Can't fathom at all. Just wanted to offer this to you.Have you ever watched the documentary "Burzynski"? Dr. Burzynski has a clinic in Texas, and he has supposedly had amazing success with some children with rare brain tumors through his alternative treatment. I would definitely suggest at least watching the documentary (it also has a sequel). My husband and I found it fascinating and quite convincing. If I had a child with a rare tumor, I know that I would at least give this guy a closer look. The first patient being testified about in the documentary, also was a twin coincidentally. Anyway, just wanted to pass on to you what information/hope I have come across. God be with you and your precious, precious little son. Keep faith. The fact that you are keeping faith, is an Amazing example to the rest of us.

    Sincerely,
    Whitney

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  155. Dear family of Ben,

    i wozuld like to have News about Ben. I hope so much he get a miracle and stay here with you. I just pray for the beautiful son of yours. With faith in God he will win the battle.
    I would like to inform you about a new form of healing, here is a link to a documentary. Maybe you want some of Reconnective Healing practitioner in the United States. In numerous cases have miraculous effects. I myself got the cure of an autoimmune disease. I can not say if it works in all cases, but I find it very effective. There are testimonies of healing of cancer, inclusive. Here are some contacts in the United States. and the video link. All luck in the world. Hugs from Germany. Rafaela Documentar: https://www.youtube.com/watch?v=d5ZU0GSoeo8
    Contact Reconnection Page http://www.thereconnection.com/practitioner-directory/?strAction=advance&dirpage=0&total=1&ciudadFlash=&paisFlash=&stateFlash=&pagina=&total=1&continente=&word=&city=&zip=&idCountry%5B%5D=1&idProvince%5B%5D=&idCity%5B%5D=
    Contact Pat Atanas: Location:
    Coral Springs, FL, 33065,United States
    Phone:
    H 954 309 8853 M 323.633-6708
    Email:
    Pat@TheReconnection.com

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  156. Someone pointed out your blog tome today - May 14. We are lifting Ben and all of you in our prayers. I was deeply touched by your posting on Monday this week. Fr. Dennis Hewitt

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  157. To Ben and his family,
    I stumbled upon Ben's story, your story, today as someone on my facebook page shared it. It hit way too close to home. Seven years ago I lost my 52 year old husband, my soul mate and father of my two beautiful boys to Glioblastoma. Yes, this is an adult disease, and it is not right that it should strike a 4 year old. It is a dread disease and, reading your blog was like traveling back to those last days. Last August, I lost my 22 year old son Michael when he succumbed to injuries he sustained when a fire broke out in our family home. My 25 year old son Matt was able to escape and suffered only minor injuries. I miss my baby every single minute of every day, but I know he is with his dad and our heavenly father. What you are going through no parent should EVER have to endure. I had to make the difficult decision to take Michael off life support and it will haunt me forever. I want you to know that I am praying for Ben, praying for you all...there are tough days ahead for sure, but I can tell you that there can be joy again...sometimes in very tiny little spurts, and as time goes by, the spurts turn into moments, and then minutes and are closer together. I know my baby is with me, I feel him all the time. I pray that you find peace in your heart and recognize that you will always have your boy with you.
    Blessings,
    Liz

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  158. My heart is literally aching for you. Twenty-three years ago, our sweet 4 year old daughter was diagnosed with a malignant brain tumor. In reading your story, your road to a diagnosis could almost word for word be our same story. I'm saying a prayer for your precious Ben and for the rest of your family. May God bless you all.

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  159. Now I lay me down to sleep, I pray the Lord my Soul to keep. If I die before I wake, I pray the Lord my Soul to take. Angel wings silvery white, flying high above the sky. If I should see them before you do, I promise to wave good-bye to you.

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  161. Have you seen this? I just wouldn't be able to sleep at night if I didn't pass it on. I don't want to give false hope but I just saw an article about a young woman (20) who survived a recurrent glioblastoma when she agreed to be the first participant in this clinical trial. I believe it is happening at duke university. If this is something you have already looked into.... I am so sorry, and I will be thinking about you in the coming days. I can't even comprehend what you must be going through. It is surely every parent's worst nightmare. http://www.sciencedaily.com/releases/2013/05/130521132122.htm

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  162. I kept seeing Blue for Ben on Facebook, and wondered what they were talking about and then today someone posted your blog. may God continue to give you and your family the strength to endure, and to keep you in his loving arms. God bless and keep you

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  163. I lost my daughter a year and a half ago and I know it is difficult to say goodbye. Life becomes numb. I read above that you have faith and believe God for a miracle and that God hasn't failed you yet. No matter what happens hold onto that Truth...he hasn't failed you and won't. He is with you through it all...including the low valleys. I don't mean this to sound simple or like you should always have a smile on but just to remind you that even if it ever feels that God has forgotten or failed you, that He hasn't. I've added you to my prayer list.

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  164. Couldn't stop the tears from flowing as I read about your little Ben. Your strength and faith at this time, amazes me. Holding your family in prayerful thoughts. May Ben's suffering be taken away from him. Sending you love and prayers.

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  165. Ben, you and your family are in my prayers. I saw your story on my facebook news feed and I've been praying for you all since. I shared your story for my friends to see and have asked for everyone to pray. Sending love and prayers to Ben and your family.

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  166. I saw that Ben passed last night at 8:05 pm. I hope you all were surrounded by peace, hope and love.

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  167. I will pray for Ben. We know first hand what a diagnosis of cancer feels like. Our 5 year old granddaughter was diagnosed with leukemia this past October. God has been good to us and we have been told that it is a 96% cure rate for this ALL. Praying for a miracle for your Ben. I don't know what we would do without the prayers of family and friends. My little granddaughter told me one day, that even if Jesus does not heal her, she will be with Jesus when she dies. Then she said, if Jesus heals me, I will still be with him, because Jesus is coming soon. God, bless this entire family, and allow them to feel your presence in the midst of all this.
    Joanne Erickson-MN

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  168. Lo siento mucho. No tengo palabras en estos momentos. DEsde España les envio toda mi fuerza para poder llevar mejor este dolor.
    Reciban un fortísimo abrazo.

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  169. I have twin boys who are one minute apart too. I can not imagine the shock and sudden pain your family is in. My heart goes out to you! <3

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  170. Drinking Green Tea has properties that help in reducing or eliminating the cancer cells from producing and growing and also asparagus will eliminate the cancer cells all together. Look it up.

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  171. This is Ethan. After my mother died of cancer 7 years ago, I started reading some on the subject. Two websites that could have an alternative cancer treatment are oasisofhope.com and dr-gonzalez.com. If conventional treatment has failed, there is nothing to lose with alternative nutritional based treatment.

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  172. God bless your beautiful family and I pray that God provides strength and peace.

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  173. Thank You for sharing Ben's short life with us. I can't imagine the pain you and your family are feeling right now. Wishing you and your family the best.

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  174. Thank you for openly sharing with us. You are in my prayers. May God grant you comfort and strength.

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  175. Your family is truly an inspiration and Ben is a special Angel in Heaven. I also believe he is running around happy and care free...and you will all be together again. God bless you always.

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  176. Ben, be healed! I command your body to line up with heaven RIGHT NOW.

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  177. My thoughts and prayers are with your family today and always. I too lost a son Reid at the age of 2 years and 4 months from an astrocytic glioma brain tumor...also an adult tumor. Peace comes in knowing our children are happy and healthy in heaven and are waiting for use to join them. Tomorrow our precious little guy would have been 11 years old and we will honor him with sending 11 balloons to heaven and singing happy birthday. Big hugs to your family.

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  178. My heart breaks for your family. I take comfort in the fact that you are comforted in God's plans for your family. I would hope if I ever had to face what you have I would have the courage and strength and belief that you do. Thank you for sharingGood has truly blessed you

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